What a wonderful time of the year!

People are such a**holes. I was going to give this a different title, but I thought – if the shoes fits? It’s that time of year when people turn into assholes, (or see them turn into a bigger asshole than what they have been throughout the year). The past 2 weeks has seen me attending …

Recently we headed down to a SNUG  (Special Needs Unlimited Group) Family Retreat at Lake Macquarie, NSW.  It was to celebrate Danger’s surgery and it was our first family getaway since what has seemed like forever!  We were accepted into the retreat program earlier in the year, after filliing out a bit of paperwork etc …

Big Rigs Article

For those of you that may have missed it – here is the article in BIG RIGS magazine:   https://m.bigrigs.com.au/news/there-for-them-just-like-family/3217657/    

Wow, what a difference 3 months make! To think that Danger had his op just 3 months ago, and has been seizure free for that time, still feels very surreal to me.  I have little moments, where my anxiety creeps up, squeezes my heart and sits there!  I am experiencing the bodily reaction to anxiety …

Sound bites of happiness

Mr Danger’s feed back from school has been nothing short of positivity, really there is so much doom and gloom at times, that a cheeky little fellow who has undergone such radical surgery, has for what it seems, beat epilepsy and is thriving since his surgery! I want my blog to be a place of …

What I wished the doctors had told me when they confirmed Danger’s diagnosis of HHE Syndrome

I love Danger’s Doctors – we have known his Paed, Neurologist and Physiotherapist for most of Danger’s life. The thing is, when we were first told of Mr D’s condition – we were mortified.  We grieved for the loss of the life we had imagined for him.  If only we were told of the greatness …

Living on the GC has its perks.  We certainly aren’t the centre of the universe by any means, and we are still considered ‘rural’ by some standards – ridiculous, I know! Have you seen the skyscrapers?! Anyway, a lot of our ‘therapy’ is done outdoors with Danger.  We have a wonderful team of therapists helping …

Well this was a big bloody week! Mikey Danger and his partner in crime, Jaz E turned 6! It only seemed like 12 months ago they were 5. The pair are just about to enter the last term of grade prep, both have tried super hard this year with everything they’ve turned their hand to, …

What’s wrong with him?!

Yep, people still use these exact words ‘excuse me but what’s wrong with him?’ Shortly after Danger got home from hospital, we had Aunty Emma up from Melbourne helping us – doing the school run, cooking the dinners and keeping the wine glasses full 😉 I was front row with Danger at the dolphin show …

Exciting news!

Loving Danger! has a YouTube channel Loving Danger! YouTube We have no content as yet (I’m trying to work that bit out!) but all the vids of Danger doing his stuff will be on here.  I hope to write a research paper one day on my amazing son(!) I am also trying to keep myself …