Mr Danger and his twin-sis are about to turn another year older next week – the big 8! To think that we have had another brain surgery in the past 12 months, plus a further confirmed diagnosis for his twin of intellectual disability, makes me feel elated and exhausted at the same time! Answers are …

Or ‘Mikeystones’, as I’m now calling them! If only I had known back then, what I know now.  That ‘all in good time’ applies to this kid and that there is no other timeline he’s working on, other than his own. What a sense of freedom this has instilled in me, as I begin to …

It really is!  😉 I have had a little read tonight on posts gone by, and this time last year I was most upset with who I was keeping company with!  No one in particular, it was just some experiences with the whole debacle of trying to keep one foot in this world and one …

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The internet can be a great place, it’s where families connect, friendships reconnect and friendships are formed. It’s where parents of children who have rare syndromes and disabilities can find understanding and compassion by others that are facing similar situations to themselves. It is hard enough to parent a child with a disability in the …

We didn’t realise that by giving him the middle name of “Danger”, just what we were instore for.  It seemed that his fate was written in the stars, before we even knew it! It was September 2011 and I had given birth via emergency C-section at 3am.  I also didn’t realise how poignot 3am a …

Where does the time go! It’s been a big 7 years, and this one, 2018, has been particularly noteworthy. It seems like only yesterday he was digging into a jar of vegemite on the cream coloured carpet in our rental property, to chewing on tablets of blue loo.  Nowadays, you’ll see him more discerning with …

Four words most parents of children with disabilities get fed up of hearing. With every right, too. ‘It could be worse’ Who decides for us what is enough, what we need and what we should be grateful for? I only had to prove in the past 7 years, repeating myself over and over again, that …

The day of the divorce was a beautiful day in Brisbane.  The sky was blue and cloudless. The sun was shining bright and the city had a slight buzz as it was beginning to wake up to start its busy day. As we walked across to the hospital, we had a feeling of anticipation, for …

Do you ever feel that sometimes you live two lives? I do. Just the thought of living 2 lives is tiring.   Some days I barely feel I’m doing a good job in this one, how could I live a 2nd one?! It’s only recently that I’ve really thought about this – that it’s like i’m …