I love Danger’s Doctors – we have known his Paed, Neurologist and Physiotherapist for most of Danger’s life.
The thing is, when we were first told of Mr D’s condition – we were mortified. We grieved for the loss of the life we had imagined for him. If only we were told of the greatness that we would find in life, because of him, we may have been able to focus more clearly.
This is what would have been great to have been told at the beginning:-
Now that his seizures are gone, we can see the true potential that he has. I think when you are a parent, you are so close to your child, you almost cannot see this, as you are so fearful of the unknown. When you are just trying to get through a day and you’ve lost count of the seizures he has had, and the behaviour is out of control, and you are at your wits end because there is absolutely nothing you can do, but take another bite or punch because he is so frightened, you question yourself as a parent and if you can go through another day like this.
But you do, you get up and face the next day, and so on. You do it for him, for your family.
Although there are never any guarantees, the one certainty is – this IS happening and you have to make choices and decisions you don’t have full control over. This seems almost surreal on the surface of the world we live in, where image and status seems to reign importance.
It doesn’t. It’s bullshit. What’s important is people, the core of people and essentially what they are made up of.
Danger is Love and we Love Danger.